I have a confession

12 years ago

I have a confession. I've been advocating and writing about rare disease which makes total sense since Case's condition is,…

Every step of the way

12 years ago

It was like that reminder, the one that you stumble upon when you weren't even looking for it. My friends…

Why? Why my child?

12 years ago

Why? That is a word that is heard often in the world of rare disease. It's a word that is…

Making it to the Lost & Found

13 years ago

What item of yours would make you almost pass out of you lost it? Or what about if you left…

I’ve never been a great writer

13 years ago

I've never been a great writer, a creative writer at least. Oh, I liked legal writing. It was structured and…

Raise your hand if you want to be an American martyr?

13 years ago

I was watching a TV show the other night where a mom had been kidnapped. The kidnappers wanted information from…

Who made you?

13 years ago

Sometimes it is difficult to know exactly what Case understands and what he doesn't. But tonight, I wanted to catch…

The blessings of late nights

13 years ago

I had planned a thoughtful post, filled with the revelations I've been seeing lately, but to be honest, I am…

The fabric of our lives … is not cotton

13 years ago

I had decided that I had enough friends. We were preparing to move to a small town in Ohio, for…

Just another lullaby

13 years ago

I don't pretend to be a great writer. I write because it is my journal and my release, and I…

This website uses cookies.