Category: Our Story

On April 6, 2009, I realized Case almost surely had Hunter Syndrome. No doctor had confirmed it, but we knew. There is just so little that can hold you together at a time like that. Sometimes, I felt like I was falling apart. I felt like everyone who passed me in the street, the grocery…

Sometimes it takes death to be reborn. Sadly, it took the death-expecting disease of Hunter Syndrome for my walk with Christ to be reborn. Let me back up. I became a Christian at a young age. Frankly, I don’t even remember all the details, but I’ve let go of the necessity for that. What matters…

Death of a Dream. When we first met with the geneticist at Vanderbilt, he did admit that he thought Case had a form of MPS, but he wasn’t sure what type. They had to get blood and urine samples to send off for genetic testing. Genetic testing that can take months. I assured him that…

When we brought Case home, we were incredibly thankful. He seemed healthy and completely recovered from the breathing problem he had at birth. Of course, I consistently asked his pediatrician and other doctors later whether PPHN would cause any lasting complications or whether he was expected to be healthy. All healthy, they assured me. No…

Now, this child was entirely unplanned, you see. This was a go-back-to-the-calendar, count-up-the-days, scratch-your-head, then sit-down-and-freak-out unplanned. I’ve had to work to forgive myself for the next part. I cried. I cried for 3 days. In fact, I sobbed. I did not plan for this child. I was exhausted with the two I had. We were…

So our second son was not really planned. Or really, not expected to happen so soon in several ways. I mean, it takes 4 years for the first one and the second just decides that he’d really like to join the party as soon as possible. As many women know, it was quite difficult to…

After having four miscarriages, I relished being pregnant. God knew what He was doing much better than I did. Even the bad parts of pregnancy were like music to my ears. The sick and throwing up part – just a bonus. I understood that the sickness came from the pregnancy hormones that rage through a…

I remember it clearly. One little line. One little line that changes your life. It’s not a line you stand in, a line you draw, a line in the sand. That little blue line on a positive pregnancy test. You almost burst with emotion, the potential of life. What will he be like? Will she…