The battle for the life of Charlie Gard (more…)
I grew up in the 70's and 80's, the era of neon and Michael Jackson, pop rocks and Coke, E.T.…
Dear Rare Disease Family, I finally built my dream home. (more…)
Christmas looks different for parents of kids with rare diseases. And instead of celebration, it's often a difficult time. Visiting…
I don't know what dang blasted cartoon is telling my son about things like high school and college, but I…
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